The story I added at the beginning of the post, talks about the fact that she's 25 now and with Trikafta, no end in sight for her life expectancy. Her lung function remains in the high 50% to low 60% range, but she feels much better than when it was 25-35%. She's also a much healthier 120 lbs. When we nearly lost her before the new med she was 80 lbs. soaking wet.

All in all she's doing well.

I'm still not convinced I won't have to bury her in my lifetime, but hopefully after she's lived many more experiences.